About our organization

OUR STORY:

Our journey began with the devastating loss of my nephew, who passed away at just 21 years old. Though his life was tragically taken by a car accident, not sickle cell disease, his untimely death profoundly impacted our family and sparked a deeper understanding of the healthcare challenges facing our community. In the wake of his passing, we were struck by the stark reality of the insufficient resources available for those affected by sickle cell disease and other chronic illnesses, particularly in Rhode Island.

As we navigated through our grief, we realized how many individuals and families were struggling without the proper support, education, or care, especially in underserved areas. The lack of specialized healthcare and essential resources left many in our community to face daily battles in silence, without the tools they need to thrive. The burden of these unmet needs was overwhelming, and it became clear that more had to be done to bridge these gaps.

Driven by a sense of compassion and a commitment to honor my nephew’s memory, we made the decision to take action. We founded this initiative with the goal of ensuring that everyone affected by sickle cell disease, as well as other illnesses, has access to the care they deserve. We want to provide the support and resources necessary to empower individuals to live healthy, fulfilling lives.

We believe no one should have to struggle alone or face barriers in receiving the medical care they need. We envision a community where those living with sickle cell disease or other health challenges have the tools, support, and resources they need to thrive—whether it’s through education, access to medical care, or community-building efforts that help people feel seen, heard, and supported. Our ultimate goal is to create lasting change, improving lives and advocating for those who often go unheard.

Meet The Team